Table 2: Detailed Demographics, Clinical Data and Distribution of Risk Scores.
1: risk scores; Pt: patient; Dx: diagnosis; M: male, F: female; Hb: Hemoglobin; CRP: C-reactive protein; Alb: albumin; PCDAI: pediatric Crohn’s disease activity index; PUCAI: Pediatric ulcerative colitis activity index; Ps: psychosocial; Phys: physical; M: male; F: female; CD: Crohn’s disease; UC: Ulcerative Colitis; L, E: Paris classification categories for disease location in CD and UC, respectively, see Table 1.
Pt # Demographics Dx Paris Classif. Anemia Disease Activity PedsQL 4.0 Scores
Patient-reported Parent-reported
Age at Dx Age at Enrollment M or F Hb (g/dl) CRP (mg/dL) Alb (g/dL) PCD AI PUC AI Ps Phys Total Ps Phys Total
A Patients in Remission with Normal Hemoglobin (n=10)
1 7 14 M CD L1 13.1 0.2 3.3 7 71 721 71 81 97 87
2 13 16 F CD L3 12.4 0.0 3.6 5 95 100 97 100 94 98
3 16 17 F CD L3/4a 13.4 0.5 3.7 5.0 68 88 75 75 84 78
4 14 15 F CD L3 12.6 0.0 3.7 0.0 100 91 97 92 78 87
5 11 14 M CD L3 13.9 0.0 4.2 0.0 97 94 96 93 94 93
6 14 15 M CD L2 14.6 0.0 3.5 5.0 90 94 91 85 94 88
7 13 15 F CD L3/4a 12.7 1.0 3.6 5.0 93 91 92 85 88 86
8 13 15 M CD L3/4b 13.3 0.0 3.6 1.3 82 97 87 83 100 89
9 13 15 M CD L3 13.3 0.0 4.2 0.0 67 100 78 75 91 80
10 13 16 M CD L3/4a 13.4 0.0 4.0 0.0 88 97 91 87 100 91
B Patients in Remission with Anemia (n=8)
1 9 15 M CD L2 12.9 0.0 4.0 10 77 84 79 581 81 611
2 11 13 F UC E2 11.9 0.0 3.2 5 601 721 641 331 441 371
3 13 17 F CD L3 10.0 0.0 3.2 7.5 381 631 471 80 94 85
4 14 16 M UC E4 8.9 0.0 3.4 0 85 84 85 80 84 82
5 8 9 M UC E2 8.1 0.0 4.0 0 97 100 98 87 94 89
6 13 13 M CD L3 12.0 0.0 3.7 10.0 581 591 591 631 69 651
7 17 17 F CD L3 11.8 0.0 3.2 5.0 67 381 571 501 501 501
8 9 14 M CD L3 12.8 1.0 3.5 0.0 88 84 87 631 591 621
C Patients with Active Disease and Normal Hemoglobin (n=3)
1 6 7 F CD L3/4a 11.7 1.0 2.5 35 67 691 671 601 631 611
2 5 7 M CD L2 11.5 1.0 3.4 32.5 631 501 591 451 66 521
3 12 14 M CD L3 13.6 1.2 4.3 0.0 72 78 74 77 91 82
D Patients with Active Disease and Anemia (n=9)
1 9 14 M CD L2 10.5 0.0 3.6 18 73 691 72 631 631 631
2 12 12 F CD L1/4b 11.9 2.0 2.7 10.0 92 84 89 78 84 80
3 7 8 F CD L3/4a 10.8 0.0 3.2 40.0 85 721 80 85 69 79
4 9 11 M CD L2/4a 12.1 3.0 2.6 27.5 90 661 82 87 591 77
5 5 6 M CD L3/4ab 9.7 1.0 2.7 32.5 67 691 671 77 66 73
6 10 12 F CD L4b 11.3 1.0 2.4 40.0 87 81 85 621 531 591
7 11 11 M CD L3 10.9 0.0 3.5 12.5 581 661 611 501 631 541
8 9 16 M CD L3/4a 12.9 1.0 3.2 12.5 82 100 88 82 97 87
9 10 10 F CD L2 9.3 1.0 3.7 12.5 98 100 99 87 88 87